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denita's Cancer BlogOctober 16, 2008
Hey, thanks for your support! I have not been feeling well these days. Radiation is making feel sick and tired : ^ (
October 12, 2008
I stumbled upon this blog and have spent the past couple of hours sobbing at all the stories. I really did need a good cry. I have spent so much energy being stoic, as to not let on to anyone around me the big trouble I am in. You see, it’s the cruelty of having cancer and children that have yet to be raised. I have almost a decade in between each of my three children and basically they have different degrees of understanding. Of course my 24yr old Nick understands cancer but he doesn’t know the “details”. Cooper 15, read the Lance Armstrong book and reccomended it to me : ). Miranda 6, thinks cancer is a “bald” thing. Although, she must have mentioned it to someone who told her that “some people live and some people die”. Every now and then she’ll ask just to see if it’s still true. My husband is stressed.I know…. but he (like 9 yrs ago) is off in la la land. He avoids me. I really need to get away from him. I am very angry at him. I WILL divorce him, even if it’s on my death bed! I feel guilty for venting like this but hey, it is a cancerblog after all. I am still in a lot of pain from the surgery and the radiation seems to make it worse. I have severe nausea and fatigue. My friends have all seem to have been scared off. I do have a couple of “phone friends” and they help keep me focused on beating this. I try not think any other way-I just have to beat this. Denita, Please chat with me anytime. There are some amazing people here. Find Mac, Joyce, and Weezie commenting on my posts. They are wonderful and have advice and support I couldn’t have made it without. I am with you. You have found a great place. Welcome to the family. Gaile Denita, Yuyu Welcome to the family! And you already discovered that Gaile’s case is a lot like your’s so you already have support from someone who knows what you are going through. Hi! Welcome! Share anything and everything that you please. I definitely recommend discussing this with your kids and keeping them involved and informed.
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There is an amazing amount of support here.
I have three kids 20, 17, 14 and I really struggled with what to tell them and when. Since my initial diagnosis they have been very vocal about their right to know. I have to say, looking back I think telling kids the truth in age appropriate terms is best.
As for inept spouses, I am in the blessed. My wife is amazing. That being said I do understand wanting to be happy with whatever time you have left. There are a growing number of people I refuse to drag along, as I walk this path. unless you are walking with me I don’t have the energy to tote you. Many of the folks here have learned the importance of choosing the people they associate with. You need to take control and dictate some of your own boundries. At first some folks may be put off but they will get over it or get lost.
Be strong and well
Mac
Denita,
One of the gifts of cancer is that you decide to live your life for yourself. I hope you feel well enough to move forward with your children in what will eventually be your new life. Do not give up to cancer – I know that is so easy to say and so god damn hard to do. I will be thinking of you and wishing you well.
Dear Denita,
I love the idea of your deciding to be living instead of dying! That’s so inspiring. I agree with the other commenters that cancer does clarify who we really want and need in our lives. I hope you are able to find peace with your family relationships, however that comes.
Take care and keep kicking and screaming. You have no obligation to accept any prognosis. Write your own!
Peace,
Kathy
Dear Denita,
Thank you for the honesty of your post; I’m sure there are a lot of people who feel the same way you do. How disappointing when a spouse cannot or will not provide the basics of care. I hope that your children will be able to help you, if they’re old enough to understand the dynamics of marriage they are old enough to understand many other things.
I don’t know if this will help you, but another post on this blog mentioned a treatment called tomorgraphy which had helped with her lung mets. I don’t know anything about it (I have breast cancer) but it may be worth finding out more information.
I’ll be thinking of you.
RJMom aka Kerry